Why I Do This Services Experience Map Start a conversation

Four worlds, one conversation.

Every rare-disease engagement touches all four — and most consultants speak fluently to just one. Here's how the work has actually shown up in each.

01

Patients & Community

AdvocacyScience TranslationCommunity Engagement
  • Launched patient-facing social media channels & global awareness campaigns
  • Organized international conferences; presented research to patient communities in US and India
  • Presenter at various domestic and international meetings; translated findings for patients & families
  • Current CSO advising patient-founded nonprofit; represents foundation at scientific forums
02

Academic Labs

Multi-Site CoordinationHigh-Throughput SequencingLab Leadership
  • Managed programs across 10+ academic sites globally
  • Led high-throughput sequencing initiatives — scaled single-cell sequencing to massive neuronal datasets
  • Developed experimental pipelines, designed study methods, mentored research teams
  • Identified research gaps shaping field direction across rare disease portfolios
03

Investors & Funders

Portfolio ManagementGrant WritingDue Diligence
  • Guided 10+ multi-million-dollar programs; generated structured funding recommendations
  • Fiscal management: budget oversight, expense monitoring, legal compliance
  • Quarterly milestone reviews driving renewal & reinvestment decisions
  • Funding briefs for Dup15q Alliance & Indo-US Rare Disease initiatives
04

Foundation & Operations

CSO / AdvisoryMilestone TrackingPartnerships
  • Led end-to-end organization of an ALS startup non-profit lab
  • Advises board on research strategy, funding priorities & portfolio allocation for FAR
  • Managed multi-site global infant brain-health program (Sage Bionetworks / Wellcome Leap)
  • Counsels CRO, academic & pharma partners on clinical strategy & regulatory pathways
25+
Years across diverse rare & complex diseases — ALS, dysferlinopathy, ARID1B, Dup15q, neuromuscular, HIV & cancer biology
14
Co-authored Publications
10+
Multi-site Programs Led
Deliberate Investments

Two recent additions to a 25-year practice.

Foundation CEOs working with pharma partners, major donors, and regulated trials need a CSO who can hold the science and speak the operator's language. Two structured programs added that vocabulary on top of two decades at the bench and in the field.

2021

Credential of Readiness (CORe)

Harvard Business School Online

A three-course business-fluency program — Business Analytics, Economics for Managers, and Financial Accounting — built for professionals who need to operate in business conversations. The vocabulary pharma BD teams, major donors, and foundation boards actually use when the conversation turns to unit economics, pricing, and portfolio decisions.

2022

Certificate in Biotechnology Project Management

University of Washington + UC San Diego Extended Studies

A four-course PMI-aligned program applied specifically to biotech and drug development: initiation, planning, and execution under regulatory constraint, with a capstone simulating a clinical development cycle. Approved by the Project Management Institute and the UW Foster School of Business.

The Journey

25 years in the field.

From the bench to the boardroom — the roles and institutions that built the practice.

2026–
Chief Science Officer (Consultant)
Foundation for ARID1B Research (FAR)
2023–25
Associate Director of Research
Jain Foundation · Dysferlinopathy / LGMD
2022–
Independent Scientific Consultant
Dup15q Alliance, Indo-US Rare, and others
2022
Certificate in Biotechnology Project Management
University of Washington + UC San Diego Extended Studies · PMI-aligned
2021–22
Project Manager (Contract)
Sage Bionetworks · Wellcome Leap 1kD Program
2021
Credential of Readiness (CORe)
Harvard Business School Online · Business Analytics, Economics, Financial Accounting
2016–18
Research Associate III
Allen Brain Institute · Single-cell transcriptomics
2013–16
Research Technician III
Fred Hutchinson Cancer Research Center · HIV & Cancer
2001–11
Research Scientist II / Laboratory Manager
Solomon Park Research Institute · ALS
2000
M.S. Biochemistry & Molecular Biology
Oregon Health Sciences University

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